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The Perfect Drug - an amazing article from NewsWeek

Wednesday, January 21, 2015   (0 Comments)
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The Perfect Drug
by Erin Biba | June 12, 2014

Evan Rose’s cancer should have killed him.

The surgeries to remove tumors that grew in his throat because of his sarcoma left him without a larynx. He now breathes through a hole in his neck, a stoma, and when he speaks he sounds as if he has a nasty case of laryngitis. In a raspy whisper, while pressing a button in his throat to close the stoma so he can create sound, Rose describes the doctor’s initial response to the outlook for his cancer—a type so rare that there are only 200 known cases worldwide—as grim. “They didn’t want to do anything dramatic if I wasn’t going to live that long,” he recalls.


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